Hi, my name is Kevin O’Neil, I am 48 years old now and I live in the small town Inverkeithing Fife Scotland. This is home for me and my wife Kirsty and our 4 years old son ‘wee Nathan‘.
I never thought that I would ever write a Blog, after all what would I write about? But as fate would have it, I’ve found something to finally write about; cancer’. But this Blog is also about severe chronic pain and living with it for the last 11 years, plus…
Now, I am 1 of only 15 people worldwide diagnosed with the rare form of cancer called malignant myopericytoma (#malignantmyopericytoma). The tumour originally started on the wall of my chest on the right hand side.
These photos were taken in late September 2015, roughly about a week before life threatening/saving & changing surgery.
Carrying that about was exhausting stuff, but with surgery round the corner, I knew that I wouldn’t be exhausted again, like that. Wrong!
You see I’m exhausted most days now. This is due to the amount of medications I need to take every day, for the rest of my life. Also down to severe chronic pain making me extremely exhausted.
So in this Blog I will be writing about these areas.
Thank you so much for liking and following this Blog . I will be making regular updates so please keep checking in too see what I have to say. But I also want to hear what you have to say, wherever you are on our beautiful planet. Don’t be shy, I don’t bite. Lol
Finally, please ask your family, friends, workmates and anyone else you can think of to like and follow the page.
Hopefully this can help me track down the #14others that have/had this rare type form of #cancer #malignantmyopericytoma
