What were you doing two years ago?

I actually wrote this yesterday Sunday 8th October 2017 and I have finally got round to posting this. I hope you enjoy and if you have any questions, comments etc then please don’t be shy. Kev 09/10/2017
If we were to be asked, “what were you doing two years ago”, would you remember? Most times I really wouldn’t have a clue, unless it was something really rememberable like a holiday, gig, party, birthday, wedding, anniversary etc.

If asked this weekend if I could remember what I was doing two years ago on this date, then that really would be different. I would be able to answer that no problem what so ever, as I was in a ‘medically induced coma’ at the Royal Infirmary Edinburgh.

The date I had surgery to remove the tumour on the wall of my chest was 7th October 2015. I was then in the medically induced coma for 3 days. So yesterday was the second year anniversary of the surgery and that has kept me living.

I will never be able to thank my consultant surgeon Mr Bill Walker and his surgical team enough for this. But also thanks to the staff in the Intensive Care Unit, High Dependency Unit and Ward 102 at the RIE. But there’s more staff to thank, my oncologist Dr Sara Erridge and her team at the Western General Hospital Edinburgh. Also Mr Yania Fouyas at the Western General for alerting Mr Walker. Mr Fouyas has operated on me three times in the past, this was for the para-spinal tumours I had. Not forgetting a big thank you to my GP Dr David Garmany and the staff at Inverkeithing Medical Centre.

Also a big thanks to family and friends (“y’all know who you are now”) for all of the support I have had. However, there is one person that I will never be able to thank enough and thats my wife Kirsty. The support I have had from Kirsty really has been amazing and even though I love her so much, I really can’t thank her enough for everything she does and continues to do.

As yesterday was approaching I have had a few mixed feelings about the whole ill health, chronic pain, being a cancer survivor thing. Never mind being in a unique small band of fifteen people worldwide with the malignant myopericytoma  diagnosis.

I get asked a lot either in person, people asking Kirsty and family members, text message, FaceBook, Twitter and good old fashioned email, “ how are you keeping Kevin?” Another question I get asked is “so what happens next?” 

My answer to the first question is more than often, “aye (I then take a deep breath), same shit different day”, or “so, so” or “shite”. 

The answer right now is quite simple. I go for a MRI scan at the Western General on Wednesday. When I got the appointment letter through there is a part in it urging patients to bring a CD to listen to. This is due to how noisy these machines are. 

So if you haven’t fallen asleep yet reading this, have you got any recommendations on what CD I should take with me?

Then the following week I go to see Mr Walker at the RIE to discuss my recent health issues that put me in the Western General and the results from my MRI scan. I can’t give away anything just yet, but I will have additional company with me at that appointment. I will of course let everyone know more when I do.

Thank you for continuing to follow either the One of Fifteen Facebook Page, Blog, Twitter account, Instagram and YouTube account. I appreciate the support.

Published by One of Fifteen

I am 1 of only 15 people worldwide diagnosed with maligant myopericytoma. Life threatening surgery in October 2015 at the Royal Infirmary Edinburgh saved my life. I am now trying to find the #14others diagnosed with this rare form of cancer. Please help me. https://about.me/kevin.oneil

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