BBC 2 Scotland Timeline: Is there enough being done to help patients with rare cancers.


Thank you so much to everyone who watched my appearance on the BBC 2 Scotland programme; Timeline. I am also very grateful to everyone that went on to share this on their own timelines on Facebook and Twitter.

A lot of people have been in touch with me to try and find an easier way to watch the piece on Timeline without having to register with the BBC. Others live in Europe, USA, Brazil, Australia etc and have been so far unable to watch.

Just press play on the link below to watch this.

One of the shows presenters, Glen Campbell, said that my tumour weighted the same as a “bag of potatoes”. In fact it weighted 10lb, and it was extremely exhausting and painful carrying that everyday. Living on a daily basis with this tumour certainly had its challenges.
The photographs below was taken on 24th September 2015, roughly two weeks before I had surgery.

The next set of photographs were taken during the 12 hour operation to remove the tumour. These were taken on Wednesday 7th October 2015. I gave NHS Lothian authorisation to have a photographer present throughout the surgery. These photographs will hope help surgeons and those in training to be a thoracic surgeon.

These are the photos that Timeline didn’t show.

This is the first time that I have published the full set of photos that I have from the surgery. You will see from at least 3 photos that my right hand ribs are still attached to the tumour.

The last 2 photos kind of give you an idea of how my chest was rebuild.

Please feel free to share this post with your friends.

Best wishes; Kev

Published by One of Fifteen

I am 1 of only 15 people worldwide diagnosed with maligant myopericytoma. Life threatening surgery in October 2015 at the Royal Infirmary Edinburgh saved my life. I am now trying to find the #14others diagnosed with this rare form of cancer. Please help me.

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