When I see my Oncologist for a routine appointment, one of the first questions I usually get is, “So then Kevin, how have you been and how’s the pain?”

Dr Sara Erridge at the Western General Hospital (WGH) Edinburgh, has been my oncologist from December 2011. Its fair too say that we have built up a good patient — doctor relationship and she is well respected in her line of work, here in Scotland and abroad. She is often a speaker at oncologist events as well.

So we usually have a good chat about how I have been over the six months in between appointments. We talk about my moods, issues with my right shoulder and the non-stop chronic pain where my chest was rebuilt. We also discuss my medications and the effect they have on me on a day to day basis.

A few time’s when I have seen Dr Erridge, she has mentioned ‘mindfulness’ and ‘mindfulness tactics’ for a distraction when dealing with pain flare ups.

Some of the tactics mentioned by Dr Erridge are basic, but effective. Doing things such as;

  • looking at paintings in a local art gallery,
  • take up photography and take pictures of whats going on around you,
  • go for a wee walk outside if you can manage,
  • read a book, watch a movie,or my favourite,
  • listen to some music.

Earlier I was feeling really rough due to the pain, so I listened to, and still listening to, Marillion and Brave (recent released deluxe edition remix). I have had this edit of Brave for a week now and I have finally got around to listening it. This is my favourite album by my all time favourite band. This album and the Steven Wilson mix of it really is fantastic.

What I find with the ‘mindfulness’ tactic when dealing with chronic pain is that it can work a wee bit for if I open my mind up to it. I find that it’s a great distraction method.



My next Blog entry will be called: Appointments, Appointments, Appointments. There has been so many recently and this will give you an idea what I have been doing recently.

I will then be going back to the story that I have been writing: LIFE WITH SEVERE CHRONIC PAIN. Part one finished of at Friday 5th November 2010, the day I was diagnosed with a para-spinal tumour.

Part two will start of with when I first met my consultant surgeon, Mr Yanis Fouyas at the Western General Hospital in Edinburgh. This appointment was either on Thursday 18th or Friday 19th November 2010.

Thank you so much for your continued support of One of Fifteen and I am sorry that I haven’t updated this for a while.

I would also like to thank everyone that has been following, and those that have recently been following my rare cancer (Malignant Myopericytoma) journey. I really do appreciate your support.

Best wishes


Published by One of Fifteen

I am 1 of only 15 people worldwide diagnosed with maligant myopericytoma. Life threatening surgery in October 2015 at the Royal Infirmary Edinburgh saved my life. I am now trying to find the #14others diagnosed with this rare form of cancer. Please help me.

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