It was Kirsty’s birthday last week and her parents very kindly had wee Nathan at their house so that we could enjoy a rare night out together to celebrate.

Kirsty had suggested going over to Edinburgh, catch a movie and then have a drink and something to eat. We went to the VUE in The OMNI Centre and we went to see; Avenger’s – Infinity War. With it being Kirsty’s birthday I thought, ‘at the end of the day, it’s Kirsty’s day and who am I to turn round and say that I wouldn’t go to see it’!

Seriously though, I am a massive fan of graphic novels and comic books, especially Marvel and DC. Kirsty enjoys some movies and their story lines that have originated from these books. So I was delighted that we went to see this as the both of us have been patiently waiting for it’s release as we’ve seen Avenger’s – Assemble and Avenger’s – Age of Ultron.

I thoroughly enjoyed the film, this was despite taking at least ‘2 pain flare ups’, then feeling tired after taking my break through pain relief medication. Then on top of that, there was my usual fidgeting about in the seats as my bum often goes numb when I’m at the movies.

Despite being in chronic pain 24/7, and despite the couple of pain flare ups that I had, I was able to ‘turn off’ from thinking about pain. As for the film itself I only have one word to describe it,………….. .

Go and take a guess what the word is, make a comment about it on any of the One of Fifteen social media sites and the first correct comment will win a prize. I’m being serious here.

At the scene when King T’Challa shouts out “Wakanda Forever” I could feel the hairs on the back of my neck rising. When I go to see a movie its got to be dead quiet and calm, however, I just couldn’t help shouting out “Wakanda Forever” myself for a laugh.

After the movie we went for a meal and it was really good to have time with Kirsty on our own. After getting the train back home to Inverkeithing I was in a lot of pain and I felt really knackered.

We left Inverkeithing not long after 12:00 that day and it must have been after 22:00 when we got back home. It wasn’t just a matter of getting washed and dressed to go out. I had to take time to plan the exact amount of medications I would need to take that day, taking inconsideration of when I take them and where I would be on that day. There is times that I feel uncomfortable when I’m out and knowing that I need to take my medications. Then there’s other times that it really doesn’t bother me. When I first started to take Methadone, I would be a wee bit ‘paranoid’ of taking it outdoors on days out, holidays etc. I was also the same when I started taking Sativex.

These days I just accept it and get on with it, regardless of where I am. For instance when I was in Dublin last month at the Marillion gig, my seat was right in the centre of the front row. I was that close to the singer Steve Hogarth, if I put my arm out then I would have touched him. There was at least 3 occasions that I had to take Methadone during the gig and he must have seen me at least 2 times when I was measuring it into a syringe for the correct amount.

Then a couple of days later, there was a few times that I would have to take it at either Dublin Airport or on the flight coming back home. At the end of the day it maybe bit of an inconvenience, however it’s thanks to that inconvenience I manage to keep myself going.

Thank you for taking the time to read this and please do not hesitate to get in touch with me if you have any questions about Malignant Myopericytoma, cancer(s), my pain relief regime, Glasgow Celtic FC and of course Marillion. 🙂 Also, thank you for your support.

Best wishes


Published by One of Fifteen

I am 1 of only 15 people worldwide diagnosed with maligant myopericytoma. Life threatening surgery in October 2015 at the Royal Infirmary Edinburgh saved my life. I am now trying to find the #14others diagnosed with this rare form of cancer. Please help me. https://about.me/kevin.oneil

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