Team @oneoffifteen at the Kiltwalk & A Prog in the Park Update

Team @oneoffifteen at the Edinburgh Kiltwalk

At 09:30 on Sunday 16 September 2018 thousands of hardy souls left Holyrood Park Edinburgh to raise money and awareness for various charities across Scotland. They were doing this by participating in The Edinburgh Kiltwalk 2018.

The walkers had a choice of 3 distances that they can choose from when taking part. They were able to sign up and do either:

    • The Wee Wander.     5 miles
    • The Big Stroll.      15.5 miles
    • The Mighty Stride.  24 miles

There was a small Team @oneoffifteen taking part and they were doing The Mighty Stride. This 24 mile route started at 09:30 from Holyrood Park and it finished at the Murrayfield Stadium.

Team members for Team @oneoffifteen were:

My wife Kirsty O’Neil and while I sat at home writing this and while Nathan played; Humans Can’t Fly on the PS4 I can’t help but feel really proud of Kirsty for signing up to do this.

Joining Kirsty was Liz Watson from Burntisland. Liz is Kirsty’s auntie, she is a really nice person with a heart of gold. Liz has a great sense of humour and kept the walkers going.

Finally, an old mate of mine and the token male (only jesting :)) Roddy Johnstone. I have known Roddy for many many years now. My family lived in Concorde Way Inverkeithing for around 21 years and Roddy’s family were only a matter of a few doors away and they are a really nice family.

Before Roddy moved to our ancient capital Edinburgh, I would often catch the same train as him when heading to work. But I also know him well from when we used to get the Celtic FC supporters bus that used to leave from the Burgh Arms Pub in Inverkeithing. Depending on the mood after a Celtic game, Roddy would often lead the ‘sing a long’ on the bus from the ‘Vienna Bhoy’s Choir’ and he often encouraged me to sign a song or two to lift the spirits of fellow supporters.

I am so proud of Kirsty, Liz and Roddy for signing up to do this today. But it’s not just about them turning up and walking 24 miles for charity. The 3 of them have been out training and hammering in the miles for many weeks now.

MAGGIES CENTRES

Kirsty, Liz and Roddy were walking to raise awareness and funds for the charity Maggies Centres. 

When I was going through 30 intensive Radiotherapy Treatments at The Edinburgh Cancer Centre at the Western General Hospital Edinburgh, we used the centre several times. This in January/February 2012, not only could we go in and have a tea or coffee after my treatments, there is also many courses that you can do. Myself and other cancer patients used the centre as a ‘quiet place.

In January/February 2016 I was going through another 30 intensive radiotherapy treatments following on from the surgery I had in October 2015. This was when I had life threatening/saving surgery to remove the tumour from hell. Once again myself and Kirsty used Maggies Centre next to The Edinburgh Cancer Centre.

Then in July 2016 and November 2016, I was an in-patient at The Victoria Hospice at The Victoria Hospital Kirkcaldy. My first stay was for 14 nights and my second was for 17 nights. Even though Maggies Fife was a short walking distance from the hospice, I would go to Maggies depending on my mood and general health.

Maggies Centres, both Edinburgh or Kirkcaldy have been great with the O’Neil family and I can’t thank them enough. Please sponsor Kirsty at:

https://edinburghkiltwalk2018.everydayhero.com/uk/kirsty-1

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My 3 heroes at Roseburn Public Park Edinburgh only a few hundred yards from the finish line at Murrayfield Stadium. I couldn’t believe how fresh they all looked as they were finishing. I went over to see them finish thanks to Tony, Liz’s husband, and wee Nathan was with us and he was playing in the park at the time.

I was so proud of the the 3 walkers, but especially proud of my Mrs O. You can still sponsor them if you would like to.

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It’s been an interesting time over the last couple of weeks with our Prog in the Park Festival. This is the first time that there has been an indoor Progressive Rock Music Festival in Dunfermline. Recently myself and Brian have been working behind the scenes to make sure that this will be a great event. Please keep checking the Prog in the Park Facebook page for updates.

We went to see local MP Douglas Chapman recently to let him know about Prog in the Park and the fact that we are raising much needed funds and awareness for the cancer charities: Maggie’s Centres and and Sarcoma UK. We are really please that Douglas is giving us his support.

I have attached the press release that we are sending out to newspapers, radio stations newsdesk’s and TV Stations. We were interviewed by Kingdom FM last week and I have attached a link for it:

https://www.kingdomfm.co.uk/news/local-news/prog-rock-charity-concert-set-for-dunfermline/

and here is our press release.

PRESS RELEASE FOR IMMEDIATE RELEASE

‘MP Supports Extremely Rare Cancer Survivor, Start Dunfermline Music Festival’

START

Rare cancer survivor Kevin O’Neil and his friend Brian Neeson are co-promoting what will be, Scotland’s first Progressive Rock indoor Festival.

The event, known as – Prog in the Park will be held on Saturday 6th April 2019 at The Glen Pavilion Pittencrieff Park Dunfermline. This starts at 11:00 and will finish by 23:00.

Rare cancer survivor 49 year old Kevin O’Neil told the press; “for some time now I have wanted to promote either a Progressive Rock gig or festival in Dunfermline. Then I had a terrible time with ill heath, especially in October 2015 as I had life/saving-threatening surgery to remove a massive tumour on the wall of my chest.”

Kevin then said “I had the surgery in October 21015 to remove the tumour at the Royal Infirmary Edinburgh (RIE), the tumour was so rare that oncologists in the RIE, Western General Hospital both in Edinburgh, hadn’t seen a tumour like this before. It was then sent to The Beatson Cancer Centre Glasgow, the Royal Marsden Hospital London. It was then sent to specialists in the USA”.

Kevin continued by saying that his oncologist called him in November 2015 to give him the news that finally they had a name for my condition; Malignant Myopericytoma. ‘Then after hearing the name of the tumour, I was told that its that the tumour is so rare, I am only 1 of 15 people world wide with malignant myopericytoma. I was that shocked I handed the phone to my wife Kirsty”.       `

All profits made will be going to the cancer charities Maggie’s Centres and Sarcoma UK. 

“Maggie’s Centres was chosen due to the high level of support and friendship whilst my family and I used their services” said Kevin.

Sarcoma UK was chosen due to the Sarcoma family of tumours is where the rare cancer Malignant Myopericytoma falls under.

A Facebook group has been set up at:

https://m.facebook.com/groups/212460709393100

Co-promotor of Prog in the Park Brian Nesson said: 

“Having been a co-producer of two Charity Music Events in 2018 including the award — nominated ‘Yes Fan Convention’ at London Palladium in March, I’m delighted to be working with Kevin on Prog in the park”.

Brian continued by saying, “It feels so rewarding to promote the music you love, while at the same time providing funds and awareness for two deserving causes.”

On Monday 10 September 2018, Kevin and Brian both went to see local Member of Parliament Douglas Chapman. Kevin said, “The meeting with Douglas went well and we are delighted that he is supporting us and helping us to promote Prog in the Park.”

Douglas Chapman MP said, “I am delighted to be able to support Kevin and Brian in this fabulous fund-raising music event in The Glen next year.

“Kevin has had a far from easy time and has come through operations and treatments for his cancer that many would not have survived. I am sure the strong family support he gets has helped him the darkest days, but now, through this event, he’s determined to help others which is just amazing.

“The fact that the money raised will go to the Sarcoma charity and to support Maggie’s Centres which helps many cancer suffers and their families, makes the this music event in Dunfermline all the more appealing

“I hope that many people will want to attend the Prog in the Park event, but also give as generously as they can to support these charities.”

NOTES FOR EDITORS

Kevin O’Neil was medically retired from the public service trade union,UNISON, in October 2015 due to his poor health. Kevin is no stranger to charity fundraising, however since his live saving surgery in October 2015 has left him with severe injuries to his body. Kevin also runs the oneoffifteen.com website about malignant myopericytoma. He lives in Inverkeithing with his wife Kirsty and their 5 year old son Nathan

Mobile:

Email

Brian lives in Dunfermline with his wife Jean. Brian is a well experienced charity campaigner.

Mobile:

Email:

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Kevin (left) with Douglas Chapman MP (middle) and Brian (right)

Tickets for Prog in the Park are available at: https://ticketlab.co.uk/event/id/1844 Tickets cost £26 plus booking fee. We also have some tickets for sale at the best shop in Dunfermline, The Little Shop of Heroes in the city’s Maygate.

Please get your ticket soon as they are selling fast. For £26 you are getting 12 hours of great music and your helping the two cancer charities: Maggie’s Centres & Sarcoma UK

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