Just A Wee Update

Thank You

Thank you so much to everyone that has recently either viewed this page, or liked it. I hope that you find my insight into living with an extremely rare cancer – Malignant Myopericytoma – and – Severe Chronic Pain interesting.

I would also like to thank everyone that has liked this page and continue to follow my rare cancer journey.

It’s That Time Again

Tomorrow afternoon I am back at the Queen Margaret Hospital (QMH) for my twice a year CT scan. Then on Thursday morning I am back at the Western General Hospital (WGH) Edinburgh for my twice a year MRI scan.

These scans are for my once a year appointment with my consultant surgeon at the Royal Infirmary Edinburgh (RIE). My appointment with him is in a couple of weeks time so I get my results then. Unless something is detected, then it’s a phone call to let me know. Many may remember that in August/ September last year, this happened. Straight after the call I packed a bag and it was straight to Western General for a 3 week stay in there and for numerous examinations.

Prog In The Park

The tickets have been on sale for around about 3 weeks now. Ticket sales are going really well and you can purchase them from:

Little Shop Of Heroes Maygate Dunfermline or from:


Tickets cost £26 + booking fee

This is on from 11:00 – 23:00 on Saturday 6th April 2018

In Aid of Sarcoma UK and Maggies Centres.

The live bands are:


If you are a first aider and you have either bought your ticket or you are holding off to buy one then please get in touch with either myself or Brian.

Me and Brian would like to thank everyone who has bought a ticket so far for Prog in the Park. We are working on bringing you a great day of Prog Rock. When we reach a certain number of ticket sold, then we will be announcing some exciting news.

We both went to see Douglas Chapman our local MP and we are delighted that he is supporting Prog in the Park.

Photo: Kevin O’Neil on the left, Douglas Chapman MP in the middle and Brian Neeson on the right.

Published by One of Fifteen

I am 1 of only 15 people worldwide diagnosed with maligant myopericytoma. Life threatening surgery in October 2015 at the Royal Infirmary Edinburgh saved my life. I am now trying to find the #14others diagnosed with this rare form of cancer. Please help me. https://about.me/kevin.oneil

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