Yesterday was a normal Sunday in the O’Neil household. We didn’t have anything planned or any reason to go out, so we let Nathan play with his Nintendo Switch for quite a while. The Nintendo Switch was part of Nathan’s Christmas and he really enjoys playing with it. 

I enjoy gaming myself, I have been into gaming since I was a wee boy and I can always remember my old Atari set that used to plug into the back of the telly. It really was great and I had hours of fun all those years ago with it. To this very day, I still love playing video games on my PS4 and VR Headset. Technology in most aspects of life really has changed a lot. Can you imagine if you could go back to the 70’s with our kids, they just wouldn’t be able to comprehend what it was really like back then and what the technology was like.

Regardless of what I do daily, I am finding that I am feeling more and more tired. So yesterday afternoon, I had to rest due to me feeling really tired. I managed to catch some sleep and when I woke up, like most days I grabbed my phone to check emails , etc.

One email I received was from Kirsteen Paterson, a journalist from The National newspaper. In her email Kirsteen explained that she was wanting to talk to me that afternoon if possible as she was writing an article to appear in todays edition about my health, One of Fifteen campaign and my involvement with Prog in the Park.

So up I got, sent Kirsteen a message and 10 minutes later I was on the phone talking to her. The telephone interview lasted roughly 30 minutes and I really did like her style with the questions she asked me. I have lost count now how many times I have been interviewed, but this interview I found that this was a journalist that really looked into another side of this rare cancer and how it effects me and my family. Then as the telephone interview and call was coming to an end, Kirsteen has asked me if it would be ok to use a photograph of myself, Kirsty and Nathan that she saw on 

Later that afternoon, Kirsteen sent me a message to say that the article was written up and that it would be in The National today (28/01/19).


Every 12 weeks I go to the Victoria Hospital in Kirkcaldy for Botox injections into my right shoulder. These injections are right into the area of shoulder blade that was removed during the life saving surgery in October 2015. The idea is that these injections will relieve pain in the area where I suffer from chronic pain (right shoulder area only). 

I was explaining to the specialist I see that I might get a few weeks relief from these injections,and that a few weeks pain relief is better than none. These injections really don’t take too long, I would say that I was probably in this appointment for less than 10 minutes. Basically it was a matter of ‘hello how are you doing and how has the pain been?’ Then a matter of taking my jacket and shirt off, the two injections and then my shirt and jacket back on. After that, the doctor checked her calendar and gave me a note for me to take back to the outpatients reception so I can make another appointment. These appointments really are that quick with a really good specialist.

Just before my appointment was due, I had some time to nip into the Kirkcaldy Maggie’s Centre at the Victoria Hospital. I spent about roughly around 20 minutes talking to Louise, one of the centre’s fundraisers about the forthcoming Prog in the Park gig. Every time I have walked through the centre’s door I have always been made to feel welcome and I have always felt welcome.

Just before going into the hospital I had time to check all the notifications from Facebook I had on my phone. What had happened was that Kirsty had noticed that my mate Kenny had posted the article about me in today’s edition of The National. Then Kirsty had tagged me and posted the link, so I have attached the link for you if you want to read it.

Kev Kirsty Nathan

I have also attached the link for my latest Vlog for you as well.

Please do watch the Vlog about the interview yesterday, the botox injections I had today, but also, how many people in the world have malignant myopericytoma.

Once again, thank you so much for continuing to ‘follow’ me, ‘like,’ ‘share,’ ‘retweet’ etc, it really does mean a lot to me.


Published by One of Fifteen

I am 1 of only 15 people worldwide diagnosed with maligant myopericytoma. Life threatening surgery in October 2015 at the Royal Infirmary Edinburgh saved my life. I am now trying to find the #14others diagnosed with this rare form of cancer. Please help me.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.

%d bloggers like this: