The Summer 19 edition of Connect, the quarterly magazine from rare cancer charity Sarcoma UK is now on their website. 

Click to access connect_-_july_2019_-_web_version.pdf

Meet the Fundraisers is a feature on pages 3 and 4 about 5 different stories and how volunteer fundraisers have given up their free time to raise awareness and much needed funds for the charity. And The Beat Goes On is the short story about Prog in the Park and how I am one of fifteen people world wide with Malignant Myopericytoma.

This article also mentions that just sort of £3400 was raised for Maggie’s Centres and Sarcoma UK.

I have recently contacted Sarcoma UK to find out when their Podcast about my rare cancer and Prog in the Park will finally be on air. Enda, the Digital Communications Manager for Sarcoma UK had interviewed myself and several other people at Prog in the Park and it should make an interesting listen.


Over the last few weeks I have had several ‘friend’ requests via Facebook. I have also had a lot of new ‘likes’ on my One of Fifteen and Prog in the Park pages. On my Twitter accounts I have had several people ‘following me’ for the first time and its the same with my Instagram account. 

So I would like to take this opportunity to thank every one that has recently started to follow me. I would also like to thank everyone that has been with me on these accounts for ages.

Over the next few days, I will be posting live footage off; Altres, Afterglow, Alan Reed and the Daughters of Expediency and StillMarillion on the One of Fifteen YouTube account. A massive thanks to lifelong family friend John for filming these.


Here’s a quick reminder of where you will find One of Fifteen and Prog in the Park social media accounts.


Once again, thank you for following me on my various social media accounts. Please share these with your friends and ask them too ‘like’ and ‘follow’. 

Whatever you are doing, please enjoy the rest of your day.

Best wishes


Published by One of Fifteen

I am 1 of only 15 people worldwide diagnosed with maligant myopericytoma. Life threatening surgery in October 2015 at the Royal Infirmary Edinburgh saved my life. I am now trying to find the #14others diagnosed with this rare form of cancer. Please help me.

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