When it comes to updating this website recently, the best word to describe it is “tardy”. 

I am sorry that I haven’t updated this site for a while. I could go into the depths of my ‘bullshit’ reason/s why this hasn’t happened, but so much has been going on recently.

I have had a lot of various appointments recently and some of these have been medical. Other appointments have been with MacMillan Cancer Support and other appointments have been to do with Scotland’s Indoor Prog Rock Festival in aid of cancer charities, Prog in the Park.


I am at the stage in my life that my health appointments are basically like a car MOT. A lot of cancer patients will describe their appointments after surgery and then their treatments package of either radiotherapy or chemotherapy like this. I have had surgery and then radiotherapy so many times now and when the appointments are all finished it feels bizarre 

So the stage I am at now is that I have a CT and MRI scan once a year (unless I am rushed into the hospital). I will most likely have these appointments at either the Queen Margaret Hospital Dunfermline or Victoria Hospital Kirkcaldy.

Then when my scan is finished, the results of these are then sent to my oncologist at the DCN Unit at the Western General Hospital Edinburgh. 

Throughout the year I have numerous other appointments I attend. I see my GP at least once every two months. Due to how complex my health needs are now, my GP tells me to book a double appointment. These appointments are at Inverkeithing Medical Group Friary Court Inverkeithing.

Then every twelve weeks I see a consultant at the Victoria Hospital Kirkcaldy for botox injections into my right shoulder blade. These injections help with the area where one-third of this shoulder blade was removed.

Every ten weeks I see a nurse at my local GP practice. This is for my HRT injections up my backside. With a combination of five major operations, 60 radiotherapy treatments and two proton sessions, this has eradicated my natural testosterone levels. 

The botox and HRT appointments are a programme of appointments I have to go for until I die. 

Then every six weeks I get my physiotherapy sessions to help with the way my head lies to one side. These are at the medical practice in Dalgety Bay. They are usually at a time that I get a bus once I have dropped off Nathan at school and I have time for either a coffee or a cooked breakfast.

There are other hospital appointments that I have throughout the year, but I won’t bother going into detail about them.

Someone once said to me, “oh I don’t know how you cope with having to go for all of those appointments”. My answer is quite simple really, “at the end of the day, I just get on with it. After all, this routine is about helping me to get better, as I want a better lifestyle”. “I want to feel better so that I can have more and more quality time with my wife and son’s”.

There have been other times when I am out and about and some people will say, “ Good morning or hi Kev or Kevin, how are you today?” My reply is often either, “ Good morning or hi, oh you know me, same old same old” or “ah same shit different day” or “what a braw day, how are you keeping?”.

I am not being ignorant with this reply’s, but the last thing I want to do is reply with something like; 

“oh hi Zoe (I don’t know a Zoe), well it’s like this, I had a terrible sleep last night, I was up at the toilet several times and I must have seen every hour on the clock”


“I’m feeling really shite today, my spine is in agony, all the areas where I have had surgery is also giving me grief”. But I don’t, I just want to downplay it and then get on with what I am doing.

So that’s the routine with my medical appointments. It’s a routine that can have different effects on my body and mind. I would be a lier if I turned around and said that these appointments didn’t bother me, of course, they do, after all I am human, just like you.


On Wednesday 4th March 2020 I was at the Western General Hospital (DCN Unit) Edinburgh for my now yearly appointment with my oncologist. It was only a matter of 10 or 12 days before that I was at the Queen Margaret Hospital in Dunfermline for the MRI scan.

The appointment/s that I have with the oncologist is the ones that I like to have someone with me. This is due to the type of news that you can hear at these appointments. Kirsty usually comes along with me to these, however, Theresa my sister accompanied me.

The oncologist that I usually see is currently on holiday and I met with Mr Grant. As Mr Grant came out of his office and shouted out my name and when I went to introduce myself to him, I automatically put out my hand to shake his. 

I then sensed a bit awark-ness as he told me that he would usually have no problem shaking my hand. However, due to coronavirus (COVID-19) he told me that guidance includes not to shake hands when meeting someone.

I met him years ago, however, he was fully aware of my background due to the numerous health service internal case conferences that my case has been discussed at.

We discussed my latest results from the MRI scan I had and I was delighted when I was told that there is “nothing to worry about”. These appointments usually last 20 minutes, however, it lasted a wee bit longer. It was a really good appointment as there were issues that we discussed that haven’t been addressed for quite a while.


I was recently at an appointment with an optician as I haven’t been for one for several years now. When going through this appointment I was really encouraged when the optician said that I had ‘excellent eyesight’. However, when it comes to looking at things in the distance, I need glasses for making out the finer details. So I will have to get into a habit of wearing these for watching TV, gaming, movies, football etc.

I have also been getting on with the preparation work for Prog in the Park 2.0 Scotland’s Indoor Prog Rock Festival in aid of Cancer Charities and that is going well. There are regular updates on the PITP 2.0 social media sites and also at

Tickets are £25.00 which is great value and you can get them from the website. If you would like to sponsor PITP 2.0 or make either a donation or donation or provide a prize for either the raffle or auction, then please contact me at:

Published by One of Fifteen

I am 1 of only 15 people worldwide diagnosed with maligant myopericytoma. Life threatening surgery in October 2015 at the Royal Infirmary Edinburgh saved my life. I am now trying to find the #14others diagnosed with this rare form of cancer. Please help me.

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