My intention was to write an article about what I was going to call APPOINTMENTS, APPOINTMENTS, APPOINTMENTS for my One of Fifteen social media campaign. I actually wrote quite a bit about the number of appointments that I had earlier this year. This included the appointment for an MRI scan and scan results I got recently when I had my oncologist appointment.

Then last week I was dealing with Prog in the Park 2.0 and how Coronavirus (COVID – 19) is responsible for the number of concerts and other events being either postponed or cancelled. So I felt it was better to write what’s happening now!


Today, Thursday 19 March 2020 I received either phone calls or text messages saying that three medical appointments would be cancelled.

When I was checking the answering machine after getting home after I dropped off Nathan at school. I had a missed call from the Sleep Clinic Royal Infirmary Edinburgh. 

I called back and I was told that my forthcoming appointment was now cancelled.

It wasn’t much longer than that when I received a text message from my local GP surgery which was letting me know that my next appointment is now cancelled. That appointment is for a date next week and due to all my health issues ongoing severe health issues, it was a double appointment. 

Then just around 2:00pm, I received a phone call from my physiotherapist. My next physio appointment which was due in the first week in April is now cancelled. When we were talking about cancelled appointments I was told that the physios were calling all their patients, not only to cancel appointments but also to ask how we are keeping and is there any issues that’s cropped up.

We had a good chat and I was told that if the physiotherapy department doesn’t hear back from me by the end of July 2020, I would be discharged. This is even though they are aware that some patients like me still need appointments. So basically I call back at the end of June to keep getting these appointments.

In the space of a few hours, three of my regular medical appointments were cancelled. However, I know that this is only the start of what will be more to come. I fully understand that the Corona Virus (COVID-19) is the number 1 priority for our NHS. 

It really is the times like this and with this crisis in place that we really do need to get behind our NHS and not go about making flippant negative comments that we all hear from some people. 


I had to make and take a hard decision about Prog in the Park 2.0 and if it goes ahead or not. At the end of the day, the last thing I want to do is put my own health, my families, friends and those attending health at risk. So I wrote to the venue, pa company, bands, stallholders and everyone involved that I was postponing PITP 2.0.

I put the following statement on the PITP 2.0 Facebook group and page;


Thank you for your patience about Prog in the Park 2.0 (PITP 2.0) and if it still goes ahead on Saturday 4th April 2020 or if it’s postponed. I did promise a statement on it this weekend.

At the time of writing this, a Facebook alert came up regarding the Fish gig at the end of the month in Edinburgh. This coronavirus is really hammering into all aspects of life and I am not prepared to take a cavalier attitude with it.

One thing I am not prepared to do is put myself, my family, my friends, and everyone involved with the production of PITP 2.0 and every one of you that was intending to be there at risk.

It really is with a heavy heart that after taking counsel, I am postponing PITP 2.0. There has been a lot of hard work been put into this by myself and others and I am gutted that it is now postponed.

I would like to thank everyone that has assisted me with PITP 2.0 and rest assured it will be going ahead later in the year.

Best wishes

Kevin O’Neil

If you have bought a ticket for PITP2.0 then this will be fully transferable to the rescheduled event.

A lot of work was put into PITP 2.0 and it was going to be a cracking day. This week I have been chilling out and looking after my health. Next week I will be working on finding an alternative date for all concerned.

Thank you for the support that you have all given me.

This virus is going to go on for several months and who knows the effect it will take across all aspects of society. Please take care and stay safe. #Coronavirusisabawbag


Published by One of Fifteen

I am 1 of only 15 people worldwide diagnosed with maligant myopericytoma. Life threatening surgery in October 2015 at the Royal Infirmary Edinburgh saved my life. I am now trying to find the #14others diagnosed with this rare form of cancer. Please help me.

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