I’m Tired I have been living with chronic pain for roughly 13 years now and I had no idea that September is Pain Awareness Month. I have had surgery on my spine twice and once on my chest that has removed tumours that have been classed as Sarcomas and that July was Sarcoma Awareness Month. … Continue reading PAM – Pain Awareness Month – September
A PROG IN THE PARK 2.0 UPDATE If you were at the inaugural Prog in the Park (PITP) in April 2019, you may recall that there was so many great raffle and auction prizes. So many people had contacted myself and Brian, asking us “so how can I win that prize?” Etc. When answering this … Continue reading WOULD YOU LIKE TO OWN A SIGNED GUITAR BY A “ROCK AND ROLL HALL OF FAME(R) AND PROG ROCK LEGEND?”
Several months ago, I received an email from a new health website called; allicantellyou.comThe people behind this website were aware of my rare cancer story and my determination to raise awareness of Malignant Myopericytoma. They were also aware that this is an extremely rare type of cancer and how rare it actually is. The sender … Continue reading ALL I CAN TELL YOU
The Summer 19 edition of Connect, the quarterly magazine from rare cancer charity Sarcoma UK is now on their website. https://sarcoma.org.uk/sites/default/files/resources/connect_-_july_2019_-_web_version.pdf Meet the Fundraisers is a feature on pages 3 and 4 about 5 different stories and how volunteer fundraisers have given up their free time to raise awareness and much needed funds for the … Continue reading AND THE BEAT GOES ON
It must have been not long after 03.15 on Saturday morning when we all got back from Edinburgh Airport after a great family holiday in Lara Beach Antalya Turkey 🇹🇷 Once we got home, it was a matter of putting Nathan to bed and then checking the mail that had been delivered over the time … Continue reading SARCOMA UK ARTICLE ON PROG IN THE PARK
THE LAST WORD.....I have attached my article that appeared in today’s edition of The National. This features the recent #sarcomaawarenessweek #rare #cancer #malignantmyopericytoma. I would be so grateful if you would please share this with your Facebook ‘friends’. Sarcoma awareness week is also about highlighting this rare group of cancer’s to our countries policy makers … Continue reading SARCOMA AWARENESS WEEK…THE NATIONAL
I know that it's been a while since I have last updated this page, but I have had a lot going on with my heath issues and normal day to day life pressures. There has also been a lot medical appointments that I have had recently, including my 12 weekly botox injections into what's left … Continue reading IT’S BEEN A WHILE!